|
|
|
|
|
 |
Public Education and Information |
|||||||
|
|
Myasthenia Gravis can strike anyone at any age. MG is a highly misdiagnosed autoimmune disease in which communication between nerve and muscle is impaired, causing weakness. Its primary symptoms, alone or in any combination are: droopy eyelid(s) , weak arms, hands, neck, face or legs, difficult chewing, smiling, swallowing, talking, breathing or shallow respiration, blurred or double vision, sense of balance difficulty or undue fatigue. MG can masquerade as overwork, under-rest, anemia, vitamin deficiency, disease of the involved organ(s), or even emotional disturbances. Its cause is unknown; there is no cure. Learn more about MG. Myasthenia Gravis Foundation of America (MGFA) was founded November 10, 1952 by Jane Dewey Ellsworth because of her daughter Patricia who has MG. The MGFA, a non-profit voluntary health organization has as its purpose to serve patient needs, promote public awareness, provide lay and medical education and provide for research. The MGFA is the only organization dedicated exclusively to fighting MG. An important part of the mission of the MGFI is to education and provide information to the public. If you would like additional information on any of the public education and information items described please click on the link or call the office at the number below.
Congressional Support There are often medical issues that can be improved through the actions of our congressmen. One such issue, for example, is IVIG injections in-hospital vs. in-home. If you would write a short letter to your congressmen about your position on this or any MG issue, it would be most appreciated. Public Relations. Do you have an interesting and touching story about MG? We are interested in hearing from you. In our efforts to tell our constituents about MG we like to let people know about the personal side of having MG. Just call the office. Annual and General Meetings Annual and General Meetings are held in the spring and fall, respectively, at a central Chicagoland location. They are open to everyone interested in MG. Presentations and a luncheon are provided. MG Brochures Many copies of our educational materials are mailed annually. MG Videos MGFI has several videos and booklets for sale at cost, like those seen on the MGFI Channel of YouTube.com. To view the ten-minute version of some videos we have available, CLICK HERE. To order the full-length version of the videos, GET THE ORDER FORM HERE. Library Books Many books on MG and related disorders are available at the office for your review. They include symposium proceedings and other technical and non-technical books and pamphlets. Local Support Groups Support groups help patients, their families and friends learn about the disease and about new treatments. Support groups also help MG patients manage the everyday problems of this chronic disease. They are scheduled throughout the year for your convenience. Health fair participation. A health fair is an exposition of several health service professionals products and services. If your group is sponsoring a health fair, MGFI would like to participate. Support for Medical Professionals Key support activities provided by the MGFI for doctors, nurses and other medical health care professionals MG News News about the MGFI Guide to MG This summary on MG has been prepared to provide information written in lay language about myasthenia gravis (MG). This is a personal view of a complicated and sometimes controversial subject. Each person's experience with MG is in some way unique, and this guide approaches the topic in a general way. Public Service Announcements. These descriptions of MG are aired periodically on Chicago area radio stations. Long Term Care (LTC) Insurance. If you have had trouble finding an insurance provider that will sell you LTC insurance, try MetLife at 708-364-2793 or email them at ksuchcki@metlife.com.
|
|
|||||||
|
|
 |
|
|
