Posts Categorized: blog

Update – Myasthenia Gravis and Coronavirus

Last updated June 16, 2020. Please respond by July 31, 2020: An online survey launched by the National Institutes of Health-supported Rare Diseases Clinical Research Network (RDCRN) aims to find out how the COVID-19 pandemic is impacting individuals with rare diseases, their families and their caregivers. Click here to learn about the RDCRN-sponsored survey. RDCRN… Read more »

Wellness Webcast: MG & Exercise – June 28 – 1pm

Let’s Move! Sunday, June 28, 2020 1pm to 1:40pm UPDATE – June 24, 2020 In our practice session, we found there is a lot of material to cover. To honor your time commitment, it was decided to break this session into two parts.  In the June 28 session, we will cover exercise with Julie Hossack… Read more »

Virtual Viking Run/Walk for Myasthenia Gravis

June 14-30, 2020 June is Myasthenia Gravis Awareness Month! The 2020 Viking Run/Walk is going virtual! We can’t gather in person this year, but we can still act like warriors to conquer MG. Now more than ever it’s important to put our energy into healthy practices like running and walking – whether it’s indoors, outdoors,… Read more »

Trivia Night – June 3 – 7pm

Join us as we kick off Myasthenia Gravis Awareness Month with this FREE event for the MG community Wednesday, June 3, 2020, 7pm – 8:15(ish)pm Our host, Jaime Rowe, PTE (Pub Trivia Expert), will challenge you and your friends with a wide assortment of tricky and tough questions. Winner gets bragging rights. Hint: Do you… Read more »

Webcast: Wellness Now – May 22 – 2pm

How to own your health in a COVID-19 world Friday, May 22, 2020 2pm to 2:45pm Speakers Julie Rowin, MD Maria D. Zepeda, NBC-HwC* *National Board Certified Health & Wellness Coach Can wellness be a priority when gyms and public spaces are closed, kids are bouncing off the walls, and loneliness is built into every… Read more »