Posts By: Joan Wincentsen

MG Activities of Daily Living (MG-ADL) Scale

With a disease like myasthenia that fluctuates from day to day and even more from month to month, it can be challenging to get a clear picture of a person’s illness. Your doctor can assess your myasthenia with several different tracking tools. One of these measures is called the MG Activities of Daily Living scale,… Read more »

Patient Experience with Pyridostigmine

In January 2022, an Illinois-based specialty pharmaceutical company collaborated on a project with Conquer MG to gain insights from MG patients. Conquer MG helped with study review and recruitment, and a study of 102 MG patients was conducted that addressed their use of pyridostigmine (brand name Mestinon®). Pyridostigmine is typically the first drug MG patients… Read more »

10th Annual Viking Challenge Recap

Victor Vipp a the 10th Annual Viking Challenge for MG

Viking Challenge for MG 2022 Walkers, volunteers, and sponsor reps – 110 in all – gathered on June 19, 2022, in Elmhurst, Illinois, to kick off the 10th Annual Viking Challenge for Myasthenia Gravis. It was the first in-person event for this group in two years, and each person was prepared to rally in support… Read more »

Viking Challenge for MG – 2022

In-Person Walk – Sunday, June 19 Virtual Challenge – June 4 to June 18 LET’S CONQUER MYASTHENIA GRAVIS There’s a way for everyone to be included in this year’s Viking Challenge. Join us for the in-person Walk on Sunday, June 19 (Happy Father’s Day!). Or take the Virtual Challenge and do as many miles as… Read more »

In Memory of Tracy Shackelford, MG Advocate

  By Mike Shackelford Tracy Shackelford, my wife, passed away in August 2021 after a long battle with myasthenia gravis.  She will be dearly missed by family and friends.  She and I had nearly 30 years together (26 married), and she was a very special person. Let me share a little bit with you. Tracy… Read more »